RG26-43. A Child First, Down Syndrome Second


Raising Our Gifted Children with Sara Troy and her guest Tasha Shearer. On air from October 27th

Tasha says that raising a young child with DS is not unlike raising a neurotypical child in many ways, but there are some definitive differences that can often feel overwhelming and scary. By sharing our story about a loved one with down syndrome hopefully we can demystify and destigmatize people with DS and their families. Often the biggest barriers are not my child himself but the expectations and rigidity of those expectations that we hold in society. 


Understanding Down Syndrome

Down syndrome is a genetic condition caused by an extra copy of chromosome 21. It can affect a person’s physical development, learning, and communication, but every individual has their own unique abilities, personality, and potential. With love, encouragement, understanding, and the right support, people with Down syndrome can live joyful, meaningful, and fulfilling lives.

Children with Down syndrome benefit from the same things all children need: love, belonging, encouragement, patience, stimulation, and opportunities to discover what they can do.

We sometimes focus so much on what a child might struggle with that we overlook their individuality and potential.

A child with Down syndrome is a child first. The extra chromosome is part of their biology, not the entirety of who they are. And this connects beautifully with the philosophy of self-discovery: seeing the person, not simply the condition.

They are not defined by an extra chromosome, but by who they are as individuals, with their own gifts, dreams, and contributions to our world.



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Your body is built using a massive set of instruction manuals called chromosomes, which normally come in 23 pairs (46 total). In Down syndrome, a person inherits a full or partial extra copy of chromosome 21, bringing the total to 47. Having three sets of instructions instead of two causes those specific genes to work overtime, producing an excess of certain proteins. Because chromosome 21 carries hundreds of genes active in nearly all tissues during early development, this overload alters the signals shaping the brain, heart, digestive tract, and facial features all at once.

I have never intimately known someone with DS before having Louie, many things were a learning curve for me. I just want to normalize this genetic difference, normalize my family and this life.


https://www.facebook.com/NatShea

Down Syndrome Resource Foundation- https://dsrf.org

Canadian Down Syndrome Society- https://cdss.ca

America. National Down Syndrome Society (NDSS)

https://dsrf.org/resources/the-lowdown-podcast


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24-27. Gift of Being Different


Sara’s View of Life with Sara Troy, on air from July 2nd

I just finished watching a show on Netflix called Sweet Tooth. It’s about all children being born as hybrids—half animal, half human—and a sickness that’s killing all humans. Watching this show, which emphasizes that being different is not a curse but a gift, made me reflect on the differences in our children today. Some are differently-abled, like those with Autism or Down Syndrome, or they might be Indigo children with exceptional talents and understanding beyond their years. It made me realize that we, as human beings, need to change and evolve into a higher consciousness—or risk being left behind.

Why do we fear those who are different? Why do we lose ourselves trying to be the same as everyone else, when we need to embrace the uniqueness of our own being?
The mindless following and comparing ourselves to everyone else, wanting to be like everyone else instead of embracing who we really are, is what’s causing the human sickness today.

When we realize our own beautiful uniqueness and gifts, despite our differences, we truly understand life in a better way. If we are still so hung up on color, sex, money, power, and greed, we will never grow and will forever be stuck in a cycle of lack and insecurities.

Let us learn before it is too late for the human race. If we continue like this, we will decline and be replaced, when we could be so much more in a higher elevation of wise consciousness and loving kindness.

The wisdom from the universe is begging us to grow up and step into our spiritual compassion, kindness, awareness, consideration, collaboration, and love. If we do not, we are doomed.

It is ultimately our choice, but I choose to rise up, not spiral down.



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